Today was a long day with all the appts. that were scheduled, a very emotional day I wanted to cower in the corner and cry mostly. Not be brave or strong. We learned more about my cancer, we learned first and foremost they did not get it all in surgery they missed as defined by the pathologist a "tiny focal" area that depending on tomorrow's case meeting with all my doctors may require another surgery. We also learned that I have a very rare type of cancer called pagents disease, which besides the lumps has several other symptoms that I was not knowingly experiencing. We learned that it will take a total of 53 treatments beginning six weeks after my last surgery 20 Chemo over a span of around 5 months and 33 radiation treatments, Mon-Fri. for 15 minutes every day until the 33 are complete, and then I will take a pill for the next 5 years as continued treatment. Once that is finished in 6 months or so I can go in for reconstruction surgery.
I was able to get 2 of the 4 drains that I have in my sides removed, which I can still feel the pain from, it was incredibly painful and at the same time I was so glad to have at least some of them out. They were my #1 drains which started clear up by my collar bone and went out the sides of me. The other drains my #2 drains are said to be under my incisions near where the bottom of my breast was...I'm told those aren't as painful but still not enjoyable to have removed.
So when I think about strong and brave I do not see myself, but I'm glad others seem to think so
my evil plan is working.
The road ahead is long, and frankly scary as hell from what I imagine hell to be. Its kinda lonely, and dark, but I've got a match and I feel like there are people with lanterns along the way, its just going to take me one step at a time and to find them, and to realize at the end of the night the "son" has never failed to rise again. Its just sometimes easier said then done. So thank you friends and family for your encouragement. Please Please don't let it stop because I'm still searching for you all one step at a time.